For Your steadfast love is before my eyes,
and I walk in Your faithfulness.
Read this post to start at the beginning of Willa’s journey to fight retinoblastoma.
Our little Willa Beatrice (Willa Bea) has been diagnosed with Retinoblastoma, an eye cancer of the retina. Retinoblastoma occurs in about 1 out of every 20,000 children. It’s a rare from of cancer, but it is the most common form of eye cancer in children. We are receiving care at St. Jude Children’s Research Hospital in Memphis with the best team possible: Dr. Wilson, Dr. Brennen, and our favorite Nurse Practitioner Tracey. Watch this video for an inside look at the incredible RB Team at St. Jude.
**Update as of September 2016**
You’d never know this kid had/has cancer. She’s just our Willa. Super sweet, incredibly hard-headed, tough as nails, and keeps the whole family in stitches in ways I can’t even comprehend. She’s such a joy! She makes these constant trips to Memphis so enjoyable. Sure, she gets grouchy and she’s even started throwing (adorable) mini tantrums, but she is the definition of God’s mercy, because let me tell you, He shows me so much mercy through her during what ought to be extremely exhausting and difficult trips.
After the enucleation of her right eye in March 2015, Willa remained tumor free until October 2015. Two tiny tumors had popped up in her left eye and were treated with laser successfully. We didn’t see much until the following January, where a tumor re-grew in one of those previous areas. This spot was lasered again and for a good while we were going back to St. Jude every three weeks to keep a good “eye” on the situation. She received laser treatment each time, and there was an “elevated area” of concern that Dr. Wilson wasn’t about to let go unchecked. I was starting to think we might never get back on the every six weeks schedule, but here we are! Clear scans for the first time in what feels like forever in August of 2016.